Thursday, May 28, 2009
Goodbye, Daddy
Tuesday, May 19, 2009
HOSPICE
Definition: A model of care that focuses on relieving symptoms and supporting patients with a life expectancy of six months or less. Hospice involves an interdisciplinary approach to provide medical care, pain management and emotional and spiritual support. The emphasis is on comfort, not curing. It can be provided in the patients home as well as freestanding hospice facilities, hospitals, nursing homes and other long-term care facilities.
I got the call early Sunday morning. To come. Come when we could. The end is very near. Hospice has been called, Dad goes home tomorrow. It was his wish to be at home. I only wish somehow that he knew what was happening. I don't even know if that is the right thing to wish. The one perpetually in control, directing all things (my Dad, not God) is now in the most opposite of positions. Things are changing so quickly inside him. So many struggles, risks, battles lost, losing battles. Failing systems... failing understanding.
We drove 5 hours, spent 3. Dad slept for over 2, then our visit. Through his difficult speech he expressed frustration that he hadn't been awake for the first part of our visit. He hadn't slept in over 2 days. I was glad to let him rest, to just be with him. But like him, when he woke and his bright blue eyes found me there, when his face lit like a light bulb, I did have regret. I have it now.
I did not say "goodbye". I could not; not because I couldn't bring myself to due to my own pain. I don't want to cause him pain. I don't think he is now able to understand, though I'm told it's been explained to him, what is happening to him. That his mind and body are both failing. That he has had another stroke. That the pneumonia is not clearing. That his throat function is nonfunctioning, and that the months of struggling to eat, spending 4 hours to find a way to chew and swallow a tiny meal, is a cake walk compared to now. That his stroke risk and aspiration risk and choking risk and pneumonia and heart risk coincide with the, I'm told, inevitable shutting down of his systems, with his daily increasing dementia, which in conjunction daily decreases his ability to speak, or to swallow saliva, or ice chips. That his throat is nearly closed due to collagen break down from his leukemia treatment 20 years ago.
He is the strongest person I know, in so many ways. A less strong person would not have survived the amazing life he's had, would not have survived the past year, the past week. The doctors have said that the only reason he is able to speak, to form sentences, to converse and relate to us at all is due the fact that his brain is so developed, so many neural connections strong, so very brilliant for so very very many years.
I am certainly walking a fine line at every moment, in denial most times-- I must be, and living in the moment the rest of the time. Is it a sign of maturity, or a free and clear blessing that I am able to exist this way? That I am not superimposing past losses, fears, fear of loss at this time-- am able to think somewhat clearly, and yet still not feel a desperate need to over analyze and find a way out of this, to control it? I feel blessed. I don't feel mature. I do feel old. I am suddenly very tired. I break down more and more. I find myself looking for distractions, a few minutes here, a few there.
Thank you. Thank you. For being there. A few minutes here. A few there.
Saturday, May 16, 2009
Dear Little One
Quiet, soft, on the mend.
Cherished moments,
the world slowed
Sun dapples the green and gray shade on the floor
of her fairy bower
through the windows of spring
green all round, quiet growing
like my sweet one
so rare in stillness
her hand in mine
a book between us
our eyes on the ceiling
both able to
share this moment
sweet like gossamer candy floss
and spun as delicate ephemeral
hearts united
my sweet love.
Tuesday, May 12, 2009
Twilight Zone
I know... every woman or girl that reads Twilight reserves the right to be "Bella". (And Edward is the reason you would wish to.) This post is not trying to say that this is any more or less true for myself than anyone else. However, some weird things have occurred to me. As briefly as I can, I'll outline what are to me, at least, some bizarre coincidences between my teen self and Bella. Some are pretty understandable, some strangely specific. Most bizarre, debatably, is the fact that not a single one of these things occurred to me while I was actually reading the books! A testament to the universal appeal and the ability of the books to stand on their own? Or plain old denial/repression? You decide...
He-- would eat things on a dare.(Bugs usually. Pizza he liked!)
He-- was very fiercely protective of me, put me on a pedestal.
We-- worried our parents. "Too intense, too intertwined..."
All encompassing... for two years... Enough passion to sustain three truly passionate relationships... though He, like Edward, was the conscience, the one saying "no".
Motorcycles banned, ban ignored- I was forbidden from riding motorcycles, though, after we were no longer seeing each other, which meant he was no longer picking me up for school in the morning in his classic sports car, which he built with his dad, a warm kind guy friend would often stop and pick me up as I walked, late, to school and give me a ride the rest of the way on his motorcycle.
Mike said he would have asked me to prom if he had known that my former "he" were no longer in the picture. Really, his name was Mike.
Sunday, May 10, 2009
Happy Mother's Day to the Amazing Women in my Life
Saturday, May 9, 2009
For my Mother
Too much strength, become weakness
Tuesday, May 5, 2009
Twilight Tuesdays ( vol. 1)
Perhaps I will reach others with similar musings. Welcome to you then! And welcome, too, are your comments.
Among the best of all from discovering these books, are the thoughts and discoveries I would not have likely made if not for the (hopefully temporary) obsession and exploration of Twilight elements. The apple photo, above, and it's photographer Diane Varner are one example. Her gorgeous art came up in a Google search for "Forbidden Fruit". http://www.dianevarner.com/index.php?x=about
The surprising and moving music of Robert Pattinson, who stars as Edward in the film is another example. #83 on the player at the bottom of the blog is Never Think by Rob Pattinson.
Viva Cinco de Mayo!
Friday, May 1, 2009
Cherry Twist
NO MORE TWIST. "
The strains and sadnesses that have recently been twisting me up inside have not gone away.