Monday, May 24, 2010

(did you say,) "Lyme Disease? OH no you Di'n't!"

"Lyme disease is the most rapidly spreading vector-borne disease in the world.

The medical world is divided with one group saying that it is rare, easy to diagnose and easy to treat, and the other saying it is a difficult diagnosis because of the negativity of the ELISA test and the lack of medical education of medical students, family practitioners and specialists.

There is an urgent need for making the public and the medical world aware of this since there is an unexplained Lyme denial problem prevalent in our medical association.
I have seen many suffering from arthritis, mental fog, and severe fatigue and most of these patients have gone undiagnosed to the present day. "
Nuff Said?

I can't even go there, to tell the horror I feel. But the blessing is the opportunity for a better than conventional , alternative treatment.

I will speak disjointedly, just and only as a manner to update you all.

Currently being treated for Lyme's Disease. Explains A LOT. But too over being in the horror to explain the mechanics of the thing, or what it's meant for me. Apparently for years now. To quote Joe vs the Volcano of his Brain Cloud: "I KNEW IT!!! I mean, I didn't know it, but .... I KNEW IT!" His Brain Cloud issue was not serious much less real (as many may say of Lyme's) but it's symptoms dogged him for years.

The part I cannot take? My darling boy, my 15 year old with Mono since March apparently has it too.

I am taking the good and the blessings right along with the curse of it. But it's taking everything I have. Not to give in. For very long. With every burst of energy I can muster, however infinitesimal, I jump on that wave, determined to fight this, to drive out the fear and depression that are attacking us both.

My honor roll student hasn't been able to attend a full day of school since mid-March. Is too exhausted to do much, walks, more like shuffles like an old man, and then leans against a wall or sits in chair in order to make it across a room. It will take every bit of strength fortitude and advocacy we can lay claim to for him to finish the year. Good grades optional. But how to convince him? He who is all or nothing, can't do it halfway and live with himself, no matter how we reassure him? We are constantly working on that, too.

So. Not terribly creative during all this. Feel a bit broken, actually. But determined. At least at the moment. So many things have been on the back burner any way, since before any diagnosis. It's hard not to be well, harder still not to be able to hope realistically for a speedy recovery.

But we're still here. Fighting. And I'm missing you all.

I check in every once in a while...

Wishing you all HEALTH!
It's the best wish I can wish for you, along with peace, love, safety, whole hearts, and dear ones near.


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