(did you say,) "Lyme Disease? OH no you Di'n't!"

"Lyme disease is the most rapidly spreading vector-borne disease in the world.

The medical world is divided with one group saying that it is rare, easy to diagnose and easy to treat, and the other saying it is a difficult diagnosis because of the negativity of the ELISA test and the lack of medical education of medical students, family practitioners and specialists.

There is an urgent need for making the public and the medical world aware of this since there is an unexplained Lyme denial problem prevalent in our medical association.
I have seen many suffering from arthritis, mental fog, and severe fatigue and most of these patients have gone undiagnosed to the present day. "

Quote from "The Spread of Lyme Disease" http://www.theconference.ca/index.php?/The-Spread-Of-Lyme-Disease by Dr. Ernie Murakami http://www.theconference.ca/index.php?/Murakami-Dr.-Ernie

Nuff Said?

I can't even go there, to tell the horror I feel. But the blessing is the opportunity for a better than conventional , alternative treatment.

I will speak disjointedly, just and only as a manner to update you all.

Currently being treated for Lyme's Disease. Explains A LOT. But too over being in the horror to explain the mechanics of the thing, or what it's meant for me. Apparently for years now. To quote Joe vs the Volcano of his Brain Cloud: "I KNEW IT!!! I mean, I didn't know it, but .... I KNEW IT!" His Brain Cloud issue was not serious much less real (as many may say of Lyme's) but it's symptoms dogged him for years.

The part I cannot take? My darling boy, my 15 year old with Mono since March apparently has it too.

I am taking the good and the blessings right along with the curse of it. But it's taking everything I have. Not to give in. For very long. With every burst of energy I can muster, however infinitesimal, I jump on that wave, determined to fight this, to drive out the fear and depression that are attacking us both.

My honor roll student hasn't been able to attend a full day of school since mid-March. Is too exhausted to do much, walks, more like shuffles like an old man, and then leans against a wall or sits in chair in order to make it across a room. It will take every bit of strength fortitude and advocacy we can lay claim to for him to finish the year. Good grades optional. But how to convince him? He who is all or nothing, can't do it halfway and live with himself, no matter how we reassure him? We are constantly working on that, too.

So. Not terribly creative during all this. Feel a bit broken, actually. But determined. At least at the moment. So many things have been on the back burner any way, since before any diagnosis. It's hard not to be well, harder still not to be able to hope realistically for a speedy recovery.

But we're still here. Fighting. And I'm missing you all.

I check in every once in a while...

Wishing you all HEALTH!

It's the best wish I can wish for you, along with peace, love, safety, whole hearts, and dear ones near.

xo

On my Plate... Up Stethoscope

The light, the air, balm to my soul and spirit. To dare to speak of a seemingly trite subject: We have had remarkable weather. All summer and into fall. Low humidity, sun filled days, beautiful changing skies, insane changing clouds. I feel blessed. Protected. Watched over.

And so it aids me as a worrier and a Mom with all that has gone on this year, and is going on currently at home here. Not to worry. To find a moment of pause. To try to be grounded. To have faith and peace. Even when confronted with things that normally would have sent me over. Into stress and freaked me out. Those catalysts are with me. But I am more at peace, more able to watch and wait. To be still and try to know that God is God.

My handsome teenager, with the lightening fast paparazzi palm, always blocking my attempts to capture his image, whose frequently requested Heath Ledger/Joker impression is eerie and uncanny, whose fine face the other night after removing as much of the test Joker/Halloween makeup as possible and who in the residue of white face, red stained lips, black ringed eyes and tousled too long hair looked startlingly like Mr. Pattinson as Mr. Cullen....

My asthmatic anaphylactic son has had pneumonia. Again. Back out after years relegated to the upper shelf are the stethoscope. The nebulizer. The illness that gave me gray hair, the illness that was not my own, but which left me gasping for breath in empathy is with us again. Am I more mature. Am I more able to cope with life. I'm not sure. Could be. Is he stronger? Probably. Am I needing to, already, on a nearly daily basis, step into a place of peace, to find quiet, to find spirit, to breathe, to wait, to pray. Yes. And does this prepare me more for what would have completely shaken me years ago? Perhaps. It was surprising to me to find that people were/are praying. While I was trying to maintain here, while I wasn't really able to reach out, to let people know what was happening, people from all over were praying. I am grateful. Thankful.

I still have my moments. I still freak out. But I'm revelling in the positive. He is on the mend now. We can all breathe easier now. For now. I am silently more vigilant than before. Whether or not that does any good. We all need to be this season. This year in particular.

Blessings and Health to you all.

xo