"Lyme disease is the most rapidly spreading vector-borne disease in the world.
The medical world is divided with one group saying that it is rare, easy to diagnose and easy to treat, and the other saying it is a difficult diagnosis because of the negativity of the ELISA test and the lack of medical education of medical students, family practitioners and specialists.
There is an urgent need for making the public and the medical world aware of this since there is an unexplained Lyme denial problem prevalent in our medical association.
I have seen many suffering from arthritis, mental fog, and severe fatigue and most of these patients have gone undiagnosed to the present day. "
The medical world is divided with one group saying that it is rare, easy to diagnose and easy to treat, and the other saying it is a difficult diagnosis because of the negativity of the ELISA test and the lack of medical education of medical students, family practitioners and specialists.
There is an urgent need for making the public and the medical world aware of this since there is an unexplained Lyme denial problem prevalent in our medical association.
I have seen many suffering from arthritis, mental fog, and severe fatigue and most of these patients have gone undiagnosed to the present day. "
Quote from "The Spread of Lyme Disease" http://www.theconference.ca/index.php?/The-Spread-Of-Lyme-Disease by Dr. Ernie Murakami http://www.theconference.ca/index.php?/Murakami-Dr.-Ernie
Nuff Said?
I can't even go there, to tell the horror I feel. But the blessing is the opportunity for a better than conventional , alternative treatment.
I will speak disjointedly, just and only as a manner to update you all.
Currently being treated for Lyme's Disease. Explains A LOT. But too over being in the horror to explain the mechanics of the thing, or what it's meant for me. Apparently for years now. To quote Joe vs the Volcano of his Brain Cloud: "I KNEW IT!!! I mean, I didn't know it, but .... I KNEW IT!" His Brain Cloud issue was not serious much less real (as many may say of Lyme's) but it's symptoms dogged him for years.
The part I cannot take? My darling boy, my 15 year old with Mono since March apparently has it too.
I am taking the good and the blessings right along with the curse of it. But it's taking everything I have. Not to give in. For very long. With every burst of energy I can muster, however infinitesimal, I jump on that wave, determined to fight this, to drive out the fear and depression that are attacking us both.
My honor roll student hasn't been able to attend a full day of school since mid-March. Is too exhausted to do much, walks, more like shuffles like an old man, and then leans against a wall or sits in chair in order to make it across a room. It will take every bit of strength fortitude and advocacy we can lay claim to for him to finish the year. Good grades optional. But how to convince him? He who is all or nothing, can't do it halfway and live with himself, no matter how we reassure him? We are constantly working on that, too.
My honor roll student hasn't been able to attend a full day of school since mid-March. Is too exhausted to do much, walks, more like shuffles like an old man, and then leans against a wall or sits in chair in order to make it across a room. It will take every bit of strength fortitude and advocacy we can lay claim to for him to finish the year. Good grades optional. But how to convince him? He who is all or nothing, can't do it halfway and live with himself, no matter how we reassure him? We are constantly working on that, too.
So. Not terribly creative during all this. Feel a bit broken, actually. But determined. At least at the moment. So many things have been on the back burner any way, since before any diagnosis. It's hard not to be well, harder still not to be able to hope realistically for a speedy recovery.
But we're still here. Fighting. And I'm missing you all.
I check in every once in a while...
Wishing you all HEALTH!
It's the best wish I can wish for you, along with peace, love, safety, whole hearts, and dear ones near.
xo
oh my goodness!!!!!!!!!
ReplyDeletehow awful...
i have known 5 people who've had lyme disease in the past two years...and it is serious stuff.
dear lord...and mono?
and when the heck did your boy turn FIFTEEN?
we need to talk. i am officially worried.
Thanks, sweetie-- I am late in responding to your forgiving & upbeat request for summer connection! I hope in my heart of hearts that it WILL happen!
ReplyDeleteAnd what of YOUR BOY? He is growing up as fast if not FASTER than mine! (I've been scared on that front for some time now, actually! BAAD AUNTIE!Absentee Friends... I WILL NOT sing a cop out Willie Nelson song!)
Can't tell you what it means to know you're there.
xxxooo! :)
Thank you, Noreen. I will.
ReplyDeletexxxooo
Dear, dear Circe,
ReplyDeleteThey often compare Lyme disease to Fibromyalgia. And it sounds as though, from your story, they are eerily similar. How awful--but at least you have an answer for it, now. I spent years not knowing what on earth was wrong with me (sounds like you did, as well). Just having a name (in my case “Fibromyalgia” and “Chronic Fatigue Syndrome”) to put to all the fatigue, brain fog, pain, etc. helped because it opened the doors to all sorts of possible healing solutions. And I could also say: “hey, NOT crazy! Doctor has a name for it!”
My heart goes out to you and your son--and to the rest of your family, as well. With my Fibromyalgia, I often have “really bad, bad, baaaad days,” so I understand. Don’t feel bad if you just can’t get much of anything done some days. It’s how it “goes.” Keep taking as many of those calming or “time away” moments as you need--and don’t feel guilty about doing so. No one asks to feel this way. All we can really do is the best we can, as cliché as that might sound.
I’m going to be working extra hard at sending extra-healing vibes your direction. And hugs, of course.
Oh, and I’m “back.” So I’ll keep closer tabs, now.
Love, hugs and peace,
Amanda
PS: Not sure if this may help you, or not, but I found Karen Andes book “A Woman’s Book of Balance” immensely helpful for the pain and stiffness related to my Fibromyalgia (it also helps relieve a lot of my morning fatigue and brain fog, give me an “energy boost“). It has a spiritual-leaning, too, which I found nice (body, mind and spirit go together, I think). Again, I’m not sure if this may or may not help you as I don’t know your exact symptoms. She’s written a few other books, too. Just thought I’d throw the suggestion “out there” in case you want to check it out. *hugs*